Past MyData events
Browse our archive of events since 2015.
Human-centric Health Data Operators and Solutions / April edition
This event has more non-European perspectives than the previous events, with Jim St. Clair, Berrin Serdar and Elfi Goesart presenting.
This series of monthly meetings and a parallel writing process aim at showcasing and describing the role of MyData operators with regard to health data and the European health data space. As an end-product, we envision a white paper on health data operators to be published in Q4/2024.
If you missed the March event, you can watch the recording here.
If you want to know more, please contact isabelle.dezegher@mydata.org and(or teemu@mydata.org, or through the Slack #health-data channel.
Operators community meeting: Interoperability
On Thursday 28th March, we will be holding the monthly operators community meeting, with a focus on interoperability. This free Zoom event is open to all.
Speakers will include:
- Yan Minagawa of Element.io talking about how the Matrix protocol is used in the public sector in Germany
- David Alexander of Mydex CIC talking about their work in real-world interoperability in the UK.
- Iain Henderson of DataPal and JLINC Labs with a functioning demo of how customer-controlled personal data can be used in Salesforce via the JLINC protocol.
There will be a Q&A and discussion with the speakers afterwards.
We have sent invites to our operators mailing lists – If you have any questions or would like to request an invite please contact alex.bowyer@mydata.org.
Register in advance for this meeting:
https://us02web.zoom.us/meeting/register/tZYlduCqrTwqG9N9DkqkxuQD_lbw9FkQ5giS
After registering, you will receive a confirmation email containing information about joining the meeting.
We hope you will join us. Please pass this on to anyone who might be interested.
Spring General Meeting 2024
The Spring General Meeting 2024 will take place online on 27 March 2024 at 13.00 UTC+0. The general meeting is open to all, while only MyData Global membership are entitled to vote during the meeting.
Time: 27 March 2024, at 13.00 UTC+0.
- See your local time here
- Add to your calendar here
Online meeting: The general meetings are held ‘online first’ in Zoom.
No registration: No prior registration is needed. The link and password to join the Zoom call will be sent to all members before the meeting.
Voting codes: All members in good standing as of 26 February 2024 will receive their voting code via email before the meeting.
The meeting is organised according to the association’s bylaws. Voting codes will be sent no later than 24 hours before the general meeting to those members who are in good standing 30 days before the general meeting.
The meeting agenda consists of the points mandated by bylaws Section 10.4 “Agenda for General Meetings”, possible proposed amendments to bylaws and other issues that members want to raise to be discussed.
The detailed agenda and all materials can be found at https://mydata-global.org/general-meeting-spring2024.
Agenda
1. Opening the general meeting
2. Calling the meeting to order
2.1. Chair
2.2. Secretary, Tellers and Examiners of the minutes and other roles
2.3. Notice and attendees present in the meeting
3. Approving the agenda for the meeting
4. Governance Reforms
5. Bylaws amendments
5.1. Amendment to Section 10.5 Voting in General Meetings
5.2. Governance Reforms requiring amendment to bylaws
5.3. Finnish translation of the bylaws
6. Internal Regulations
6.1 Internal regulations for the Board and specific Board roles
7. Mandatory tasks of the spring general meeting
7.1. Presentation of the annual report by the Board
7.2. Presentation of the performance report by the Steering Committee
7.3. Presentation and approval of financial reports and relief of responsibility
8. Any other business
9. Closing the meeting
Practicalities
Online participation: The password to join the Zoom call and voting codes will be sent to all members in good standing as of 26 February 2024 before the meeting.
General best practices:
- Please keep your microphone muted by default to avoid potential sound issues.
- The meeting is moderated by the Chair.
- If you’d like to make a comment or proposal, please indicate this by raising your hand in Zoom
- NB. If you are dialled into the meeting using a phone number, you will not be able to raise your hand or participate in indicative voting.
More discussions on the agenda take place in our Slack (join here), at the #general-meeting channel. Welcome!
Data Spaces Symposium 2024
Join the world’s leading event on data spaces! The Data Spaces Symposium is set to reconvene at Darmstadtium, Frankfurt Region this year. Organized by the Data Spaces Support Centre (DSSC) and the Data Spaces Business Alliance (DSBA), this symposium is a pivotal gathering for those at the forefront of data space innovation and strategy. It serves as a platform to showcase the latest market-ready use cases, advanced technology solutions for existing and emerging data spaces, and the essential work done by the DSSC in crafting a foundational blueprint for common European data spaces, aligning with the European Data Strategy.
The annual conference of the Data Spaces Support Centre takes place during the Day 3 of the Symposium. Join us to learn about the newly published Blueprint v1.0, and engage with the data space experts and enablers of data space initiatives!
Please visit the official site for the full programme and registration!
Patient-centric Health Data Operators // March event
The next event in the monthly series on patient-centric health data operators & solutions is on March 6, 2024. This event has more non-European perspectives than the previous events.
This series of monthly meetings and a parallel writing process aim to showcase and describe MyData operators’ role with regard to health data and the European health data space. As an end-product, we envision publishing a white paper on health data operators in Q4/2024.
If you missed the February event, you can watch the recording here (password: xe+PL64f)
If you want to know more, please contact isabelle.dezegher@mydata.org and(or teemu@mydata.org, or through the Slack #health-data channel
Tentative agenda on 6 March (TBC)
GMT 2:00 pm – Introduction & status of white paper (Teemu , Isabelle)
GMT 2:10 pm – Discussion: problem and vision (Isabelle, Alex)
* Benefits/ incentives
* Challenges toward implementation
GMT 2:50 pm – Point of view from European Commission on a patient centric EDHS – (Malte Beyer-Katzenberger, EC DG Connect)
GMT 3:00 pm – We Are and SOLID Platform (Elfi Goesaert, VITO)
GMT 3:10 pm – Utilizing MyData for Preventive Healthcare Services. (Kim Naheasal, SNPLab)
GMT 3:20 pm – Conclusion and next steps
MyData Global Town Hall: Governance Reform
This Town Hall will report on collaborative work with the community to refine governance reforms that will be presented for adoption at the March 27 General Meeting.
This collaborative work has taken place in the #governance-reforms slack channel. It has built on the draft reforms that were presented to the 2023 Autumn General Meeting, including this summary presentation and Draft Board Terms of Reference.
The Town Hall will provide a brief progress report, with ample time for discussion and questions. Materials will be circulated in advance.
The meeting invite is sent to all members via email.
Background:
Starting from last November, we’ve invited members to discuss on how to strengthen the governance structure to make MyData Global more efficient and impactful. The governance reform focuses on four issues:
- Criteria and profile for recruiting new board members
- Board member terms and elections/appointments
- Accountability mechanisms between the board, staff, and general membership (including mechanisms for removing board members or voiding board decisions)
- Representation and empowerment of regional hubs
Patient-centric health data operators: delivering solutions that empower patients to be in control of their data
Let’s build on the good energy of the Connecting MyData Champions – health and wellness (held in Dec 2023). Based on the event and discussions, there is clearly a need to act more – and thus we invite you to meet monthly in 2024!
WHY: join forces to ensure patients’ and citizen’s voices concerning health data are heard
WHAT: shape the vision described in the individual-centric EHDS (European Health Data Space) blog post into CONCRETE PROPOSALS that
(1) each of us can use to support their own organisation,
(2) we can use as a community to influence regulators and
(3) can form the basis of funding to develop solutions.
WHEN: once 1 month, first Wednesday of the month, from 16:00to 17:30 EET
HOW: The agenda of the first meeting on Feb 7, 2024
- introduction of participants
- agreement on objectives and the way forward
- discussion of producing a white paper
If you’d like to know more, please contact:
– Isabelle de Zegher
– Teemu Ropponen
The best way to engage is via MyData Slack / #health-data channel
Join the Slack at – www.mydata.org/slack/
The collective impact of children’s data
MYDATA4CHILDREN invites EVERYONE to our first ever co-created ZINE!
Why:
We have a very important mission (protect, empower and inspire children) but it is an extremely challenging one. Children’s data is a difficult and sensitive subject, often loaded with negativity or disempowering messages. The discussion is mainly focused on the effect of data on the individual child. With this workshop, we want to explore the collective impact of children’s data and gather ideas and examples from the real world. We want to inspire others to take action!
Thus, the idea is to create a zine that is very visual and easy to read to facilitate the engagement with stakeholders, experts, policy makers, developers and business leaders.
How:
We will host two design sprints on January 31 to create the first prototype of MyData4Children’s 2024 Zine.
The prototype will then be refined and polished, with the aim of publishing it in spring 2024.
Who:
Everyone is invited to join!
Even if you are not involved with children’s data at the moment, you are welcome to participate and learn what is happening.
When: January 31, 2024.
We want all our friends to join, so we have two sessions to cover the different time zones:
Session 1: 9:00 – 10:30 GMT/UTC
Session 2: 17:00 – 18:30 GMT/UTC
Where: Online
Miro (collaboration tool): https://miro.com/app/board/uXjVN6-kcXE=/ (Password: JoinMyData)
Preparation:
Think about what you want to say about the collective impact of children’s data. You will have one opening in the zine to share your thoughts, projects, ideas, calls to action, etc.
Join discussions at the MyData4Children Slack channel. You can contact Dixon or Paula Bello via MyData Slack.
Autumn General Meeting 2023
The Autumn General Meeting 2023 will take place online on 15 November 2023 at 13.00 UTC+0.
The full agenda with background materials can be found at https://mydata-global.org/general-meeting-autumn2023.
Please take a moment to familiarise yourself with the proposed bylaws amendments, new three-year strategy, 2023 annual plan and budget, and other agenda items before the meeting.
MyData Global is electing its new leadership at the AGM 2023. As the first step in implementing the proposed governance reforms, the AGM will be proposed to elect a Transitional Board to serve from January through June 2024. The Transitional Board will be responsible for recruiting members of the new Board, which will be installed in July 2024.
Details about elections’ timeline, and process as well as information about expected candidates and responsibilities of the Transitional Board can be found at https://mydata.org/elections.
Time: 15 Nov 2023, at 13.00 UTC+0.
- See your local time here
- Add to your calendar
Online meeting: The general meetings are held ‘online first’.
No registration: No prior registration is needed. The link and password to join the meeting will be sent to all members before the meeting.
Bylaws and voting and elections regulations: The meeting is organised according to the association bylaws.
Agenda and materials: The agenda of the meeting consists of the points mandated by bylaws Section 10.4 “Agenda for General Meetings”, possible proposed amendments to bylaws and other issues that members want to raise to be discussed. The detailed agenda and all materials will be sent to members no later than 7 days before the meeting.
Agenda
1. Opening the general meeting
2. Calling the meeting to order
2.1. Chair
2.2. Secretary, Tellers and Examiners of the minutes and other roles
2.3 Attendees present in the meeting
3. Approving the agenda for the meeting
4. Governance overhaul: for discussion, not decision
5. Bylaws amendments
5.1. Amendments to Sections 4.1, 4.2, 4.3, 4.5, 5.2, 5.3, 10.4
5.2. Finnish translation of the bylaws
6. Internal regulations
6.1 Internal regulations for transitional board and Steering Committee
7. Mandatory tasks of the autumn general meeting and other related agenda points
7.1 Appointment of auditors
7.2 Compensation for board members and auditors
7.3 Strategy for 2024-2026
7.4 2024 Strategic Work Plan
7.5 2024 Budget
7.6 Membership fees
7.7 Board and Steering Committee elections
7.7.1 Size of the board
7.7.2 Extending the mandate and term of the Steering Committee through June 2024
7.7.3 Opening the board and steering committee elections
7.7.4 Resuming the meeting election results
8. Any other business
8.1 Plans for the MyData awards and conference in 2024: for information
9. Closing the meeting
Practicalities
Online participation: The link to join the online meeting call and voting codes will be sent to all members before the meeting.
General best practices:
- Please keep your microphone muted by default to avoid potential sound issues.
- The meeting is moderated by the Chair.
- If you’d like to make a comment or proposal, please indicate this by raising your hand.
- NB. If you are dialled into the meeting using a phone number, you will not be able to raise your hand or participate in indicative voting.
More discussions on the agenda take place in our Slack (join here), at the #general-meeting channel. Welcome!